Hormone Therapy
Hi ladies, I just got home from my first lapro, and am officially diagnosed with endo. My doctor would like to start me on a hormone therapy to prevent it from returning. Do you have any suggestions or experience with hormone therapy? I'd like to hear the good and the bad experiences to help me learn more. Thank you in advance!
If I can remember correctly it's been a long time since my first lapro but my doctors didn't get all the gas out, they use to blow up your stomach and I had the worst shoulder pain. I remember thinking that was the oddest thing. Lol I've now heard that others have also felt that pain.
I'm happy to hear you say it's wasn't that bad. Each day will get easier after surgery and you are in my prayers that it gives you relief.
I am curious how long your doctors wanted you on something like Lupron, if that was even an option?
My only advice on the medications that put you into menopause, I've heard from others and experienced myself that forcing menopause makes the side effects harder than if a person naturally goes into menopause herself.
I've also heard that birth control pills or shots helped friends of mine but I was at the age that I wanted to try for a baby so everything was off the table for me for years.
You've got a great group here that has experienced a lot, that can help and remember just because something didn't work for me or someone else, it could still work for you.
I've also heard of a lot of women that had lapro with great results. I believe they had good doctors that took the time to try to remove every bit they saw.
I will be thinking of you.
I've been on both Lupron and Depo-Provera. The Lupron they wanted me to take for 8 months before trying in-vitro again. It was during the winter and I had to put in a window air conditioner. The hot flashes and night sweats were unbearable. My emotions were all over the place. I made it 6 months and told them I couldn't do it any longer. Lupron I would get a shot once a month. With Depo-Provera, I didn't have hot flashes or night sweats. That shot is every 3 months and neither can be reversed. The Depo didn't help with my pain though. I hope that the shots affect people differently.
I'm sorry you have endo. It's a disease that doesn't make a lot of sense. Some people are full of endo with little or no pain and some that don't have a lot of endo but the pain is out of control. They don't know what causes it, no cure, nor how to treat it.
When I found out I had endo 16 years ago I bought every book I could on the subject. I still try to read to see if they found anything new.
If you live in a big city or you are close to a good hospital I would look there. There is a doctor in San Francisco, his name is Dr. Andrew Cook MD. He only treats women with endo. He also has a book called "Stop Endometriosis and Pelvic Pain". I like what he has to say. He says there should be,specialist for endo that not every OB/GYN should be performing these surgeries. Unfortunately I live in Iowa but he even gives free consultations on the phone or maybe email.
My last advice is don't allow it to keep growing. I spent 16 years trying to get pregnant and surgeries in between to clean it up but my endo has now spread elsewhere. I now have it on every organ in that region. My bladder, colon, intestines, everywhere.
Take the time to research and get you a good doctor that's honest with you. And remember you found this website so you are not alone. I just found this website as well. If you need anything, have a question or just want to talk I'm here.
Hi, I was on Zoladex= goserelin implants for 5 months ( caused temporary menopause-hot flushes, brain fog, worsened vision) shrunk my endo a lot. Had 2 laparoscopies afrewards. On Ciles pills now, no breaks. Helps with pain and spreading of endo but bleeding a lot, very long time but not so heavy flow as before 1.op.
Hormones do not prevent recurrence they may slow it down some but they can not prevent. Read Dr. Andrew Cook's book stopping endometriosis and pelvic pain before consenting to treatments. He covers all the available types of treatment. Very good info. Also join Nancy's Nook on FB
@A MyEndometriosisTeam Member it wasn't that bad. The pain isn't even that bad. My incisions barely hurt, the real pain I feel is where they burnt out my endo. I can always tell when I need meds again because I feel pain lol. The worst part is that damn breathi ng tube and how dry it makes your mouth /throat. Thank you for checking in:)
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