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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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A MyEndometriosisTeam Member asked a question 💭

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Does Anyone Know If There Is A Way To Get Financial Help For Endo Care?

A MyEndometriosisTeam Member asked a question 💭
Horseheads, NY

I'd like to get to an actual Endo specialist, but the ones in my area either don't specialize enough to handle extra pelvic Endo, or don't take my insurance. My husband thinks I should just stick it out and do PT, which I plan to anyway, but then do nothing else and follow up in 3 months to see if PT helped the rest of my body. I'm not a doctor, and I believe that there is musculoskeletal pain, but I don't believe that there's no Endo. There was confirmed Endo on my colon in 2013 and it didn't… read more

A MyEndometriosisTeam Member

I am in Owego. I ended up going up to Buffalo NY . There is a specialist up there. If interested please let me know and I can give you that information. I looked into the city as well, it was just… read more

Interested In Participating In An Endometriosis Research Study To Advance New Technology?

A MyEndometriosisTeam Member asked a question 💭
San Francisco, CA

Hi EndoWarriors! I am the founder of an early-stage startup that aims to provide precision care for women's health, including screening, early detection, and personalized case management. We utilize extremely comprehensive biomarker monitoring, systems biology, and machine-learning/AI. Our first indication is endometriosis, and we are in the process of running multiple studies to prove out and further develop our technology. We currently have a pressing need for 5-6 volunteers with endometriosis… read more

A MyEndometriosisTeam Member

I sent you an email...

Collaboration On Endometriosis Care Pathway Project

A MyEndometriosisTeam Member asked a question 💭
London, UK

Hi everyone,

My name is Alaina Zubair, and I am currently pursuing an MSc in Healthcare and Design at Imperial College London. As an endometriosis patient myself, I am deeply passionate about improving the care pathway for those of us affected by this condition.

I am working on my dissertation, which aims to design and create a peer-reviewed consensus statement to establish a comprehensive and effective pathway of care for endometriosis. To make this project as impactful and practical as… read more

A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member Haha of course! If you can let me know your email address, I will contact you in a few months time once ethics approvals are completed.

My Daughter's Endometriosis Has Become So Severe She Is Unable To Work. Has Anyone Experience This Or Has A Solution In Being Functional?

A MyEndometriosisTeam Member asked a question 💭
California, CA
A MyEndometriosisTeam Member

Non medication things: ☺️
- Magnesium vitamin - I take pill and gummy form totalling 610 mg (adult dose is 350 for females). I've tried that and it doesn't work for me - again, I have migraines and… read more

How Do You Deal With Fatigue And Lack Of Energy?

A MyEndometriosisTeam Member asked a question 💭
Horseheads, NY

I'm trying to cut down on the caffeine, and hopefully one day cut it out altogether. Right now, though, I don't have any other way to keep myself going. The fatigue is pretty much daily and I can't work if I'm unfocused and unmotivated. I also have C-PTSD and take an antidepressant, but the fatigue tends to spiral into depression if I don't do something to pep up. I do take vitamin d and have increased it now that it's autumn, per my therapist's suggestion. I can't drink coffee anymore, my… read more

A MyEndometriosisTeam Member

I've found that yoga has helped a lot with my energy levels. I try and get up every morning and do a half hour session. It's not easy to get up sometimes, but I often feel much better throughout the… read more

Fatigue And Dissociation?

A MyEndometriosisTeam Member asked a question 💭
Horseheads, NY

Does anyone else get so exhausted that they feel disconnected from themselves? Lately I'm feeling like things that happen are almost like dreams, and I'm walking around in a state where I feel like I'm just disconnected from myself and from other things. I know that it's also a symptom of my c-ptsd, but I wondered if it's also just the endo brain fog that's making me feel this way? Thanks for reading, guys.

A MyEndometriosisTeam Member

Virtual Meet Wed, Jan 31, 2024 10PM Eastern Time.

A MyEndometriosisTeam Member asked a question 💭
New York, NY

Hi everyone, today Shanice and I met virtually and we'd love to meet more of you. If you are interested in joining us virtually Jan 31 at 10PM ET please email (Email address can only be seen by MyEndometriosisTeam users) and I will add you to the guest list. Thanks!

A MyEndometriosisTeam Member

Ok love thank you

Constipation Questions

A MyEndometriosisTeam Member asked a question 💭
Epsom, UK

Hello!

Does anyone have tips for managing bad constipation?

Are chia seeds helpful or not? I have had constipation always since birth pretty much as I also have spina bifida (open defect kind- long story). I have already experimented with enemas and tried a few other options as well in the past too. I used to take a medication called Movicol but I stopped taking it six years ago. It helped me stay sane and healthy however. Advice and support needed pronto. I am happy to try anything at this… read more

A MyEndometriosisTeam Member

UPDATE- I finally managed to speak with him today. I have a appointment for mid September.

How To Cope With The Pain And All The Side Effects Of Endometriosis At Work.

A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Before leaving my job, I sought out their ADA policy. I would look into your company/organization and see if they are legally required to offer you support through policies such as that or if there… read more