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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
7581 questions
I’m A Bit Hopeless.. Who Knows The Best Doctor In The Netherlands?
A MyEndometriosisTeam Member asked a question 💭

had my uterus and endometrial tissue removed in february. The doctor (who apparently is specialized in endometriosis) said to me “yes we removed everything your colon looks great” but here we are again in menstruation without uterus for the third time now, with blood. It’s less than with a uterus but still there is blood coming out. And my anus/lowest part of my colon hurts again. Like 8/10 so I can’t do it without painkillers. While I was hoping life would get better but no, I can surely say… read more

A MyEndometriosisTeam Member

Sorry if you have to go through this. Yes get a second opinion

posted 3 hours ago
Is There Any Women In Their Forties Who Was Diagnosed At A Young Age?
A MyEndometriosisTeam Member asked a question 💭

And 41 I started having problems with pain at age 15 and I was diagnosed with endometriosis at age 17. Between 17 and 31 I had 6 laparoscopies 1 of which at age 24 allowed me to conceive my daughter .. I was diagnosed with PCOS at age 37 and have in all those years I tried almost every pill, patch, shot or iud and suppository there was.. Even Pelvic Floor physical therapy for dysfunction and pain. The pain caused so much tightening /hardening of the surrounding muscles, ligaments anf nerves… read more

Has Anyone Looked Into Adoption? (Open Discussion)
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Thank you

posted 6 hours ago
Has Anyone Here Been Diagnosed With Endometriosis Of The Stomach/diaphragm/esophagus Etc?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Hey boo,I was diagnosed with endo in stomach and the diaphragm, bowels and uterus

posted 3 days ago
Hysterectomy Experiences?
A MyEndometriosisTeam Member asked a question 💭

Severe endo. Fatigue, severe inflammation/cramping, brain fog, constipation/blood in stool, extreme hormone imbalances, extremely painful sex, weight gain and trouble losing. You name it, I’m experiencing it. Considering full hysterectomy. Would like to know what relief you’ve experienced in these listed areas (and any others) from full hysterectomy.

A MyEndometriosisTeam Member

me too i would love to hear more experiences with having a hysterectomy, my body is killing me

posted 3 days ago
Can You Take Visanne And Still Get Pain And Periods? My Dr Told Me Since I Still Have Pain That I Don’t Have Endo….so Confused….
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Thanks for that! I am at the point where I am weighing the side effects to the way I feel without it….so far taking Visanne is winning!

posted 5 days ago
How Did Everyone Get Their Diagnosis?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Mine as well through surgery just copping with day to day things trying to get on with my life 😌 sometimes days can be very stressful and I'm in pain. A lot of people don't understand how much it… read more

posted 5 days ago
Anyone Else Have Low Libido With Endo?
A MyEndometriosisTeam Member asked a question 💭

Stage 4 pelvic endometriosis

A MyEndometriosisTeam Member

Yes

posted 4 days ago
Anyone Willing To Share Their Experience On The Mini Pill With Endo, And Whether They Think The Mini Or Combined Is Worth It At All?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Haven’t used it im on Norethindrone

posted 4 days ago
How Many Surgeries Have Y'all Had For Endometriosis????
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

I had one in early April. 4 weeks after, I am having my first period. I’m not on any medication at the moment and hope I don’t need to.

posted 5 days ago
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