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How Long Until I Will Be Able To Move Around For A Whole Day After My Hysterectomy? How Bad Is The Pain? What Was Hormone Replacement Like?

A MyEndometriosisTeam Member asked a question šŸ’­
Casper, WY

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for anā€¦ read more

October 24, 2015 (edited)
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A MyEndometriosisTeam Member

I used to think hysterectomy was a cure to Endometriosis. Unfortunately it is not. I have done extensive research and the best Endo treatment available is complete @excision surgery. Sometimes we need more than one @excision surgery over time. The more experienced the specialist is with deep @excision surgical techniques the less surgeries will be needed and can go many years with relief. There is no known cure for Endometreosis. I am hopeful more specialists will go back to school and learn @excision techniques, and doctors will learn how much more effective they are than any other surgery for Endometreosis. I am also hopeful a cure may be found. šŸ’›šŸ™

April 24, 2018 (edited)
A MyEndometriosisTeam Member

I had my hysterectomy almost a month ago and am still having a hard time being up for long periods of time. I thought it would be much faster healing time as I have had surgery 4 times for endo removal and was up and moving pretty quickly after those. Good luck with your surgery and take it easy! !

November 21, 2015
A MyEndometriosisTeam Member

I had laproscopic surgery and the surgeon left a bunch of Endo and infection behind. The only successful surgery I know of for keeping Endometriosis at bay is complete deep excision surgery. With complete deep excision they take the Endo out from the root. It took me a bit to find a surgeon specialized in complete deep excision for Endo. Since Endometriosis can spread outside of the reproductive areas hysterectomy is not a cure. Removal of uterus and cervix is a cure for Adenymiosis which is why I had those two things removed. I did have 1 ovary removed and both fallopian tubes since they were utterly destroyed by a combo of the Endo and a more harmful than anything laproscopic surgery. This is my experience. Also I was getting months of pelvic floor physiotherapy and massage therapy of abdomen pre and post complete deep excision operation as prescribed by Endo specialist. No hormone replacement, as there is no menopause with one ovary still doing well. šŸ„°

August 28, 2021
A MyEndometriosisTeam Member

I am in exactly the same position. I really empathise love. Iā€™ve recently had a colonoscopy to check if my endo is inside my bowel- thank Christ it isnā€™t. Iā€™d really like to know if the pain & discomfort (time off work etc) of hysterectomy outweighs the pain & discomfort Iā€™m going through now? At times I feel like a broken record because EVERYONE keeps telling me to ā€œjust have a hysterectomyā€ to fix my endo and I keep telling them a hysterectomy is NOT a cure for endo. A hysterectomy might fix my adenomyosis but my endo might flare up again and knowing my messed up insides, it will! My ovary will have to be removed as well, as itā€™s stuck to my uterus (my other ovary has already been removed). Surgical menopause isnā€™t much fun from what Iā€™ve heard & I donā€™t think HRT (hormones) will be an option because oestrogen feeds endometriosis. My gynae says menopause will be my best friend. WTF? Do I just get a hysterectomy & make my family deal with my murderous impulses? Or do I keep taking pain killers by the boat load? Advice would be very much appreciated. Thank you. Ps Iā€™m 42 & Iā€™ve got 3 kids so Iā€™m not exactly a spring chicken or particularly attached to my ā€˜uterusā€™.

April 25, 2018
A MyEndometriosisTeam Member

I had a hysterectomy in June of 2022 and honestly I donā€™t recall the specifics of when exactly I was able to move around, but I do remember I used my momā€™s walker the first month and then as I was feeling better, used her cane to help me get around and not put stress/strain on my body but give it some movement. Please whatever u do, do not rush the healing processā€¦. Ur body needs time to heal and recover properly. Lean on ppl for support. The pain varies from person to person, but it gets better. LISTEN TO UR BODY. A heating pad can definitely help ease the pain or a warm/hot bath if ur able.
The only thing I didnā€™t have removed was my right ovary, as it wasnā€™t affected. My doctor and I discussed this prior, to keep if not diseased, so I didnā€™t have to go on hormone replacements. My dr was hesitant on the hysterectomy, but I knew it was time and Iā€™m glad I listened to my body because after surgery they found I had adenomyosis and indeed my uterus needed to be removed along with my cervix. I too was diagnosed with Stage 4 Endo, back in March of 2006, when I had my first lap. If I knew then what I know now, I definitely wouldā€™ve spoken up more and went thru with the hysterectomy much sooner. It doesnā€™t make u any less of a woman and there are indeed plenty of children in this world who could use ur love and compassion. Being a parent is more than just having a child come thru u. However, with that said, if I didnā€™t go thru and overcome all that, I wouldnā€™t be the strong advocate that I am today. GOD is always working everything out for our good. Praying šŸ™šŸ» U too have a very successful surgery and recovery. GOD BLESS šŸ¤— ā™„ļø

January 23

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