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Does Anyone Have Endo Symtoms All Month?

A MyEndometriosisTeam Member asked a question 💭
Durham, UK

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

February 22, 2016
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A MyEndometriosisTeam Member

You’re doctor is full of shit and has no clue what endometriosis is!!! It’s pain all day every damn day with maybe a smattering of good days throughout. Seek another provider and fast!

May 18, 2023 (edited)
A MyEndometriosisTeam Member

I find that Doctors usually dismiss what you are saying and think they know better.
We are the survivors of this nasty condition and living it everyday of our lives!
They have no idea about the impacts of endo and the havoc it bestows upon our lives!
They read out from a textbook which is in black and white! That makes them a pro lol…
If they lived in our bodies, I doubt they would agree with the books!
Just living with a day of endo is crippling!
I myself, live through it every single day! I have cramping, bloating, nausea, shooting pain, the list is endless…

November 5, 2022
A MyEndometriosisTeam Member

I experience symptoms every single day. It just gets worse when it’s supposed to be that time of the month(I’m on a continuous birth control so that I don’t get one). When I actually did get one it was a nightmare. I swear I would need a transfusion after it was over. The fatigue has to be the hardest part for me to maintain. Sadly enough Ive gotten used to being in pain every day or nauseated, sometimes both. I used to keep track of my symptoms on the OVIA app but I stopped when they became the same every single day. Nothing I try works for me. I’m only 40 so the idea of a hysterectomy, even partial doesn’t sit well with me. Aside from that it may or may not help. I read mixed reviews all the time. It’s real easy to give up some days because I don’t see a “cure”. What I am looking into is changing my diet. I have heard quite a bit of good luck stories in that aspect. It would benefit me in other ways at least if it didn’t help with the Endo so it isn’t a lose lose situation I suppose.

May 16, 2023
A MyEndometriosisTeam Member

Yes, symptoms are NOTICEABLE all month long. Definitely worse during my cycle. The doctors just do not have a clear understanding or compassion for anything that is not classic textbook disease or disorders.

April 4, 2023
A MyEndometriosisTeam Member

I have Stage 4 Endometriosis, I remind myself daily that my situation could be so much worse but I deal with symptoms every single day of my life. Emotionally I have severe depression, I’m exhausted all the time, I have have about 20% of the bladder control I should have especially when I cycle, I’m on hormone therapy so I don’t get my period (which helps a huge amount for the pain I was having...every month, debilitating painful, migraines, in bed for 6 days, vomiting, diarrhea, unable to work, taking opiates just to survive). Because of the hormone therapy I’m on heavy antidepressants. I don’t feel myself at all. I miss myself everyday. But exercise helps, I eat very few foods that are inflammation causing (no dairy, alcohol, wheat or products that contain gluten, only natural unprocessed sugar, limited red meat). I use CBD and THC daily. All of this helps. And sleep. Do what you can and forget the rest. You have to accept it. Find stress reliving activities. Activities that bring you joy.

June 9, 2019

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