I've recently gone to two endometriosis specialists in Germany who work only with endo girls and patients. When I asked them about the Mirena they said it is only helpful if the endometriosis is localized around the uterus, as the hormones the Mirena releases are only in that area. Essentially, the Mirena will not help stop endo growing in other parts of your body

Ah that's a tough one - there are things you can do apart from medication that help.
Medical grade chamomile (ie from a pharmacy) helps with inflammation
Yoga twice a week helps stretch the muscles around pain and reduces your stress levels which helps
Other exercise helps keep your body fit and more able to cope
Endo diets are great - avoid foods that affect your oestrogen eg non organic meat (cows etc are injected with oestrogen) and anything that spikes your sugar which affects your oestrogen (sugar, caffeine, alcohol) and usually gluten too (gluten is genetically modified wheat which includes hormones)

For pain try acupuncture (I've heard it works wonders and there are endometriosis specialised acupuncturists)
Progressive muscle relaxation by Jacobson is also something you can do which helps you learn to consciously relax muscles when pain spikes

Hope you figure something out xx

I couldn't wait to get off Mirena, it gave me more migraines, hair loss, and acne and when I got off it, that wasn't fun either as I went thru the Mirena crash...will never use that again!!

I've had the Mirena for approx 2.5 years since my last lap. I've just had another lap so it didn't stop my endo growing back. It has, however, stabilised my adenomyosis and although i still get periods with it they are much lighter and very little pain compared to when I don't have the Mirena. My pain had all come from the endo. So its not perfect but does help me with some aspects of managing my conditions and has meant i am delaying a hysterectomy so I stick with it.

I have had the Mirena for 3 years. Honestly it’s was terrible for the first two years. Constant cramping, that I would consider moderate on severity. I expereinced irregular periods and spontaneous spotting. It tripled the size of the cyst on my ovary. Bloating. Breast tenderness.

After two years everything improved. I only experience cramping during my period and it’s totally tolerable without medication. I do not experience extreme bloating like before. My only complaint is irregular periods. Is the Mirena perfect- no. Is it everyone-no. Hasn’t it improved my life tremendously-yes. Do I still wish there was a more natural way without side effects- yes