Connect with others who understand.

Sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have Chronic Pelvic Pain And Had A Chocolate Cyst Rupture-is This Indicative Of Stage Four Endometriosis?

A MyEndometriosisTeam Member asked a question πŸ’­
Laguna Niguel, CA

Ever since using paragard in 2012, I started dealing with pelvic pain and ovarian cyst ruptures. The heavy bleeding each month was horrible to the point where I had to use bladder protection underwear. In 2016 I had a severe cyst rupture where the discharge looked like melted chocolate. The two gynecologists ive seen (mine back in IN and my current one in CA) didn't seem concerned enough to suggest a laparoscopy despite essentially being in constant pelvic pain from ovulation to the start of my… read more

July 3, 2017
β€’
Be the first to like/hug
A MyEndometriosisTeam Member

So with staging of endometriosis, it's staged by how much the endo will impact fertility, not by pain and so forth. Endo is weird in that someone with stage one may have severe pain while someone with stage four experiences no symptoms and finds out they have it when they struggle to have children.

As for your bowel and bladder question, I myself experience some pain with bowel movements but it's not every time. Depending on where the endo is, it can be inflaming digestive organs and causing issue or you may have irritable bowel syndrome. Some people with endo get IC which is when the lining inside of the bladder is inflamed. This could be the source of your pain while urinating but it also could be endo or both or something completely different.

July 11, 2017
A MyEndometriosisTeam Member

No, it definitely doesn't mean that you are stage IV.. I recently had laparoscopy in May to have endometriomas (chocolate cysts) removed from both ovaries... unfortunately I went to a specialist more recently because I am still experience pain and he told me that I have another cyst in my right ovary again so I am scheduled to have a second surgery next week, but he told me I am stage III and endometriomas can begin at any stage... so don't worry, pain isn't always indicative of what stage you are... I highly suggested you see a specialist. The first surgeon I went to wasn't and didn't get everything.. which is why I am having a second.. GOOD LUCK!!!

July 4, 2017
A MyEndometriosisTeam Member

That sounds awful, I'm sorry to hear you have had so much discomfort πŸ™ You may consider scheduling a consult with an endo excision specialist because a lot of ob/gyns are kind of clueless about endo. The Facebook group Nancy's Nook has a list of excision specialists, so that could be a place to look if you're not familiar with any specialists. Good luck! πŸ’›

July 4, 2017
A MyEndometriosisTeam Member

Thank you so much! Also, do you experience pain with bowel and bladder movement?

July 4, 2017
A MyEndometriosisTeam Member

Thank you! I will definitely look into that.

July 4, 2017

Related content

View All

What’s Your Favorite Exercise When Dealing With Constant Ovary/cyst Pain?

A MyEndometriosisTeam Member asked a question πŸ’­
Las Vegas, NV

Which Insurance Do You Have? (US)

A MyEndometriosisTeam Member asked a question πŸ’­
Seattle, WA

Was Anyone Diagnosed With Endo After Having A Cyst Removed And Are They Connected?

A MyEndometriosisTeam Member asked a question πŸ’­
Lancing, UK
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in