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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Lupron

A MyEndometriosisTeam Member asked a question 💭
Lindenhurst, NY

Hi ladies. I am new here and i guess relatively new to the world of endo. I went to the ER about 2 month's ago for pain that wasnt going away. They found a large cyst on my left ovary after multiple tests. I found an amazing dr and he did excision surgery a month ago. He said i have stage 4 endo. He removed the cyst and the endo he could but unfortunately alot remains. I am starting Lupron on Monday (dr also stated hes putting me on an "add on" medication as well). Any positive experiences on Luread more

May 15, 2018
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A MyEndometriosisTeam Member

i was on a lesser version of liupron and i just can’t remeber the name but it was literally just a version that had a smaller dosage. everyone is different but it was the worst experience of my life. within 48 hours of taking it i has full blown acne, crying spells, depression, anxiety, aggravation, nausea, and was starting to show signs of suicidal thoughts. even after i was off of it it took about a week for me to feel better since the acne took a very emotional strain on my confidence. (i have never ever had more then one pimple at a time in my life and my forehead and cheeks were completely covered). after i stopped taking the meds, my body got all messed up and i probably had the worst period of my life and spent two days in the hospital because of pain. after reading this i would not be surprised if you were hesitant to want to take lupron but before you swear it off, i jut wanted you to know that i do have a history of having these sorts of side effects when it comes to taking pain meds. like i said, everyone is different and reacts differently and i wish you the best of luck

May 16, 2018
A MyEndometriosisTeam Member

Friedman i had just one monthy injection and I refused to continue this horrible treatment.The side effects lasted for about 20days and now i m 60days after the shot and i m still waiting for my period.I have terrible bloating and every night i feel like my period its coming but nothing yet!!My doctor told me that the first injection is not that effective but guess what|??For me it was and the prove is that i m still waiting for my period.Its the worst “treatment “ and the problem is that its not actually treatment

May 19, 2018
A MyEndometriosisTeam Member

Friedman i had exacly the same side effects 48 h after injection and my doctor told me its not from lypron because its not possible to activate the hormones in 48h but i know that its not true.I know how i felt.I m not crazy.I was so mad with my doctor.

May 17, 2018
A MyEndometriosisTeam Member

I m on lypron and unfortunately my experience is horrible.Everyone is different.I m waiting my period after lypron(its been 8weeks since injection)I had really bad side effects and i didn t even complete the 3months “therapy”.I think with the add on therapy side effects would be lighter. I did a research about lypron and since its not an actual therapy i m not sure if it deserve to try it.I refused the second injection

May 16, 2018
A MyEndometriosisTeam Member

I am a 51 yr old female experiencing lower abdominal pain, bloating, fullness,more gas than normal, mote weight gain, if i move too fast the sudden sharp pain stops me in my tracks. I have had a partial hysterectomy and a tumor the size of a peach in my late 20's early 30 and was left with 1 ovary and female sac(uterus) i feel pregnant and full

March 16, 2020

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