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Do I Have Endometriosis If My Endometrium Is Thin?

A MyEndometriosisTeam Member asked a question 💭
San Jose, CA

I have a doctor's appointment tomorrow and I'm beyond anxious for several reasons. I'm seeing a new doctor and I'm scared that I will be denied the diagnostic laparoscopy again. My biggest fear is having another transvaginal ultrasound and being told that my endometrium is very thin, again. I've been on Lo Loesterin continuously since late September and I have polycystic ovarian syndrome. Does thin endometrium mean that I don't have endometriosis?

July 15, 2018
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A MyEndometriosisTeam Member

Hi BethanyGeiger! You're right about continuous Lo Loesterin thinning the uterine lining. According to the last doctor I saw, that was the cause of my breakthrough bleeding in June. I'm so sorry to hear about the bladder lesions. That sounds absolutely painful. I'm fearful that I might have it because I urinate four times in one sitting. I can't self diagnose, what I need is a doctor that doesn't brush off my concerns. As you said, I also need to be firm and trust my gut. This is my health and wellbeing we're talking about. I'm happy to hear that you got the surgical confirmation that went beyond the ultrasound. I look forward to commiserating about endo and PCOS with you. Thank you for answering this question and being open to answer any other questions I have. Also, I can show you some obscure drawings I did to express the frustration if you're interested.

July 15, 2018
A MyEndometriosisTeam Member

P.s. I also have pcos and never saw any evidence of the endo on ultrasound. If you have other questions or want to commiserate with me please do!

July 15, 2018
A MyEndometriosisTeam Member

If you’ve been takin the lo loestrin continuously, that would help prevent uterine lining build up in your uterus and I would expect it to be thin-that’s why birth control is one of the treatments used in endometriosis patients and sometimes helps some (endo is often outside the uterous though so the thickness of the uterine lining is somewhat irrelevant- my worse lesions are all up on my bladder. The ONLY way to definitively diagnose is surgery, seek out different doctors and be a bit pushy. It’s so frustrating and so many doctors are uninformed. I know it’s exhausting and frustrating. I truly wish you the best of luck in finding someone who takes you seriously. Trust your gut though and be as firm and decisive with them as you can manage to demand the care you need.

July 15, 2018

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