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Treatment Options

A MyEndometriosisTeam Member asked a question 💭
Fort Collins, CO

Hi
I am going in for my post-op appointment in a few days, and I know my doctor wants to change my treatment. I have endo all over my uterus, colon, and rectum, and they were not able to remove any during my last surgery. I’ve been on several oral contraceptives, but all have made me feel even worse than I do with nothing. The last one made me gain 30 pounds and bleed nonstop the entire time I was taking it. I have read that IUDs can be an option, but I don’t have any experience with that. I… read more

August 20, 2019
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A MyEndometriosisTeam Member

Only thing my mirena has helped is periods are not so heavy - so can see it would be helpful if heavy periods were your issue.. hasn't helped my pain... am having a hysterectomy soon to sort my adenomyosis... I'm pretty sure it's prob the mirena that's been giving me extremely frequent UTIs

August 22, 2019
A MyEndometriosisTeam Member

I’ve had mirena since 2016, it is a great choice for BC but in my experience not great for endo treatment. I grew an 8cm chocolate cyst while on mirena and it hasnt stopped most of my pain and bleeding

August 22, 2019
A MyEndometriosisTeam Member

I got the mirena as well in May. They sedated me while they inserted it so the procedure wasn’t bad, but the next 2 months the pain was horrible. Now I get a little bit of pain relief with it.

August 21, 2019
A MyEndometriosisTeam Member

YES! The mirena has brought me sanity for the last 4 years. I was bed bound for nearly 2 years before I finally got the mirena. My cervix is like stone though, so insertion was a horrible experience. But worth it. I've had some other health changes that for some reason my symptoms of endo are coming back BUT, I had a 4 year stint of my pain being 100% bareable. My first doctor(who sucked) told me the iud wasn't even an option until she tried a good 10 other things that made me feel worse. My current doctor, who is a specialist, said an IUD is one of the first things she tries with endo because it has a great track record with helping.

August 20, 2019
A MyEndometriosisTeam Member

Thank you so much! I really appreciate it!

August 25, 2019

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