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MRI - What Is Your Experience With Interpreting The Results?

A MyEndometriosisTeam Member asked a question 💭
Luxembourg, Europe

Hey Ladies! I'll be having my MRI soon and was wondering if you could share your experience with having MRI results interpreted. Have you had conflicting diagnosis? Were the doctor looking for other conditions (i.e. adenomyosis)? Is there anything I should be looking out for?
Thank you!

November 27, 2019
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A MyEndometriosisTeam Member

No, the only thing it showed was the huge “mass” (they upgraded it to that post MRI). It was done without contrast but like Abby said, I hear that endo is very rarely found on MRI. It’d be awesome if it was but laparoscopy is the way to go. If you get an excision doc, they can excise the endo at the same time.

PS I also had five or so ultrasounds for this in 2018 and it showed nothing but the mass.

November 27, 2019
A MyEndometriosisTeam Member

Thank you for sharing @A MyEndometriosisTeam Member
Based on all the answers I'll definitely have more than one doctor checking the scans. And I suppose that might be more useful to identify how the internal anatomy might be affected rather than being able to see the endo itself. Great to know, thank you ladies!

November 28, 2019
A MyEndometriosisTeam Member

No, the mass was the endometrioma. It started out with being called a “cyst” then got upgraded to “mass”, which scared me more that it was cancer. The final diagnosis of that bundle of fun was “endometrioma”. :)

November 28, 2019
A MyEndometriosisTeam Member

Thank you a lot ladies!
Oh dear, based on your experiences it doesn't leave much hope that the MRI would be very helpful.
I already had a lap that confirmed stage 4 endo. Unfortunately the surgeon was not amazing.. She didn't take any photos or videos during the surgery and her notes are not great either.. So now that I changed the doctor, he would like to see what's going inside possibly without additional lap to prepare for a potential second op.
@A MyEndometriosisTeam Member I suppose the 'mass' they found was the adhesions? How did they explain that?

November 27, 2019
A MyEndometriosisTeam Member

I only had the ultrasounds done and when they found my fibroid they also saw enough evidence for signs of endometriosis, because my doctor said they were not sure which one was causing me the most of my pain.

November 27, 2019

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