Also, here is the study with the statistics about 98% of people with endometriomas having DIE.

https://obgyn.onlinelibrary.wiley.com/doi/full/....

Hi there! Welcome to the endo community. I also had endo that wasn't found until it developed into an endometrioma & I had high CA 125 levels. I was put on progesterone to suppress symptoms & also had surgery to remove the endometrioma. Unfortunately at the time I didn't know that 98% of people who have an endometrioma also have DIE (deeply infiltrative endometriosis) which is where it grows in the deep pelvic cavity.

So unfortunately not knowing that, I didn't have surgery with an endometriosis expert & they only took out the endometrioma & left everything else in. They put me on oral progesterone & between the endometrioma removal & hormones, my pain reduced somewhat but my bowel symptoms & fatigue didn't, & over time the pain has gotten worse again & I have pain every day even though I don't have a period or ovulate anymore.

That's because the hormones don't actually stop it from growing & spreading, they just supress some pain. The old idea that pregnancy is a treatment is also false. Some people with stage 3 or 4 endo (you are automatically at least stage 3 if you have an endometrioma) are still able to get pregnant & for some the pain is supressed a bit during pregnancy & breastfeeding, but usually not the fatigue or other issues like bowel issues, and not all people even have reduced pain during pregnancy. Some people even have endometriomas grow bigger during pregnancy, or have pain return right after childbirth.

If you really want the best outcome possible, then you need excision surgery with an endometriosis expert. The top excision surgeons are able to find & remove all or nearly all of the growths in only one surgery, which gives you the best chance long term of not having it grow back, not needing recurring surgeries & reducing pain as much as possible. These drs usually have recurrence rates of only 5-15% which is a lot better than the average OBGYN's recurrence rates of 80%. You can find a list of vetted drs in a facebook group called "Nancy's Nook Endometriosis Education" - it's run by a nurse who worked with the pioneer of endometriosis excision surgery for decades & there are hundreds of patient reviews of the drs. There is a lot of up to date accurate info in there as well about treatment options and effectiveness. I'm not saying all this to freak you out & I'm sorry if it does I just wish someone had told me all this before I had an incomplete surgery & spent years in pain for no reason when there are better treatment options out there. Good luck!

Sorry it’s the wrong pain.i can Totally relay.

I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo never shrink with this visanne, rather gets more bigger by 3cm. I also diagnosed with adenomyosis after using this visanne for 6months.