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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is Your Opinion On Norethindrone? And Do You Have Any Reccomdations For New Treatments?

A MyEndometriosisTeam Member asked a question 💭
Winter Garden, FL

I was on orilissa which worked great for me but my doctor made me stop taking after 2 years due to long term health concern and side effects seen in the drug trials. We decide to try norethindrone and i have been on it a month and i might stop taking it. I know with new hormones there a usally a 3 month ajustment period. Ive been on several different ones. About a week of taking this one and so on the cramps got worse, got more instense, more often, i got terrible headache more often, tired all… read more

July 9, 2021
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A MyEndometriosisTeam Member

Ugh that was pure evil for me!!!! It gave me god awful migrines headaches for almost three weeks that put me in the er multiple times!!!!!! Those medicines are just evil the side effects are worse than endo!!!!

July 10, 2021
A MyEndometriosisTeam Member

What a Warrior! So good that you look into other alternatives. While I'm not familiar with Northindrone I know what it's like to endure side effects and knowing when to stop. Not the Dr but You know your body best. I've had Endo over 20yrs. In my day it was Lupron, birth control pill and more of the like. Some meds I couldn't even take for 2wks. Always pay attention to your body and be an Advocate for yourself. Side effects can take a toll on your body that can have consequences for months to years. Endo is painful and you may feel its tearing your life apart, however remember we can control decisions regarding meds. I simply live by Faith! Please keep us posted.
Blessings💞👍

July 9, 2021
A MyEndometriosisTeam Member

Hello. I just started this hormone last week. A very small dose because hormones make me feel awful. I’m noticing more pain actually. I hope it all works out as time goes on. I wish you luck :)

July 10, 2021
A MyEndometriosisTeam Member

I was put on norethindrone 2 weeks after surgery (may 2021) and it made me have horrible cramps and spotting. It reminded me of the pain I would experience before surgery. I tried it for two months, increasing the dosage but the cramping and spotting didn't stop. I was exhausted from the whole thing not to mention depressed. Just two days ago I started a different pill, medroxyprogesterone. My doc said that those that have bad reactions to the norethindrone seem to do better with medroxyprogesterone. I hope🤞! Only time will tell. I say see if a higher dosage helps and go from there. I hope you are able to get some answers and relief❤️

July 9, 2021
A MyEndometriosisTeam Member

I've been on both. My endo is bad enough that my Dr was willing to sign off on me being a lifer so I could exceed the two year deadline but then I lost insurance and so I lost being on it. I am currently on norithindrone and I hate it. I'm bloated all.the time, tired all the time and still have break through bleeding and pain. The orlissa was the most amazing thing I've ever had and gave me my life back. Praying to get Insurance again so and resume treatment.

March 24, 2023

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