Connect with others who understand.

Sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced A “lightning” Pain With Endometriosis?

A MyEndometriosisTeam Member asked a question 💭
Midlothian, VA

i haven’t made a post on here in awhile, but here i am. idk who else to ask this to /:

i was asleep in bed the other night when i woke up due to this horrible pain in my right side (where my endo usually hurts). it was like lightning anytime i moved even an inch so i pretty much couldn’t move due to the severity of the pain. i got pretty scared because it still wasn’t gone after like 10 minutes and i couldn’t move but then it went away. is this an endometriosis thing?? my pain has been coming… read more

September 26, 2021
View reactions
A MyEndometriosisTeam Member

thanks for all the responses, sorry to hear you are all going through it too! ): i actually know it isn’t my appendix because i’ve already had appendicitis haha! 😂 so i’m like ahhh what is this! xD

September 26, 2021
A MyEndometriosisTeam Member

I mean in an ideal world medical professionals would be educated and trained in identifying and treating endo related issues but we live in a hellscape of ignorance and medical trauma. You should be able to go to the ER and get cared for without worring about anything. I'd also say in a perfect world, go anyways just to be safe. But I'd ignore my own advice and try and tough it out knowing how stubborn I am. At the very least document the severity, duration, and location of your pain episodes on a symptom app on your phone. There are lots to choose from so read the reviews and get one that you feel OK using. Describe what type of pain it feels like (stabbing, throbbing, burning, pulling, twisting, deep, etc) and what triggers the pain. Then using email or something recorded, report these episodes to your doctor if you have one. Do you have a doctor and health insurance right now? Also get in the habit of recording your diet and activity level and if you notice any patterns of pain happening after certain activities or foods you can try to avoid them and see if it helps a tiny bit. I can't mess with soy, alcohol, or pizza and heavy lifting makes everything so much harder for a few days after. It's not a cure but it will give you some tools to communicate and understand your situation as much as possible. 🫂💛

October 13, 2021
A MyEndometriosisTeam Member

Yeah doc thought I had appendicitis because at that point I had not got my dignosis but found it it was endometriosis it’s so bad it hurt so much as well you just want to stay in bed and cry because moving is agoney and no one understands how much it actually hurts they just say aww it’s a bad period of you have a low pain threshold or take painkillers and you will be fine and when you don’t want to get out of bed you are called lazy and it’s not fair because they don’t understand what it’s like

September 27, 2021
A MyEndometriosisTeam Member

This happened to me this week actually & raised some concerns i know im about to come on my cycle soon but jot sure if i should schedule an appointment with my OBGYN about it .

September 26, 2021
A MyEndometriosisTeam Member

Yes. No idea exactly what is happening in my body when that happens. I just lay still and focus on my breathing and watch something on my phone until it goes away. I think it has something to do with one or more nerve in the pelvic area. It's a pretty terrifying jolt and i have definitely passed out before too. That being said - we should all ask a doctor about this in case it's something really bad and not just regular ol' devil endo. Especially for you since it's on the right side and that is where the appendix is located.

September 26, 2021

Related content

View All

Period Stopped And Vaginal Dryness Was Extreme While On Visanne. Anyone Had The Same Problem?

A MyEndometriosisTeam Member asked a question 💭
singapore

Spotting While On Visanne

A MyEndometriosisTeam Member asked a question 💭
Philippines

How Has The Mirena IUD Helped Your Endometriosis Pain? (What Side Effects, If Any.. Did You Experience From The IUD?)

A MyEndometriosisTeam Member asked a question 💭
Janesville, WI
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in