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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Think Of A Hysterectomy?

A MyEndometriosisTeam Member asked a question 💭
Leeds, ME

I am 31 suffering endometriosis for awhile. I am so sick of the pain that I go through every day. My boyfriend doesn't even understand at all how I feel which makes it even harder. I was thinking about talking to my endo specialist about moving with a partial hysterectomy. Is it a good idea to take that next step?

February 25, 2023
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A MyEndometriosisTeam Member

I think it’s completely down to you and whether you want children or not. I got told at my last surgery that if I wanted them I need to do it now. I’ve always been someone who’s dreamed of having children. So I’m going to start trying in October and I’ve made the decision that after I’ve had kids I’m having one. 1. Because I want to be able to look after my children without being riddled with pain and 2. Because I’ve reached the end of the amount of pain I can take. But at the same time I know this isn’t a cure, because there isn't one currently. It truly depends on what you want in life, where you’re at and if you’ve gone through all the options with treatments. Also I’m very sorry your partner doesn’t understand, it’s the hardest thing I suggest sitting down and having a proper discussion on how this disease impacts your life. I hope this helps 🤍

July 20, 2023
A MyEndometriosisTeam Member

I had a partial hysterectomy and then had to go back in and have a bi-lateral Salpingo Oophorectomy a year later. This was the best decision I ever made! I still have issues but my pain is much better and not having a period is wonderful!

July 18, 2023
A MyEndometriosisTeam Member

It is so hard to know that the end of becoming a mom, how do u feel emotionally?

May 2, 2023
A MyEndometriosisTeam Member

I'm 43... Old lol. I've never had children, but my doctor thinks it's the next step because the fibroid tumor is growing on my uterus. Im emotional about it to say the least. But I don't want to live on high doses of birth control either. Your body will lead you. 🙏🙏🙏❤️❤️🙏🙏💕💕💕💕

May 1, 2023
A MyEndometriosisTeam Member

I had partial hysterectomy last September because of the excruciating pain and severe blood loss every month also causing anemia. I would also recommend you to think about it twice and to look for other opinions, too, because hysterectomy might not be able to solve all your problems plus it can cause new ones. I don't have that blood loss issues any more and the cramps are gone, but I still have a monthly cycle, endo-belly and pain in the lower abdomen and the legs. And since the surgery I have even more issues with digestion than before, my hormones are all mixed up, endo keeps growing, my hips hurt almost all the time and - really odd - my body balance got worse: I tend to hit tables and other furniture all the time if I don't concentrate on not doing so...

February 26, 2023

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