Connect with others who understand.

Sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Feel Alone In Their Lack Of Diagnosis?

A MyEndometriosisTeam Member asked a question 💭
Arizona City, AZ

Last month, I started having severe back and ovary pain. I guess I had a period but I had no warning signs, and I genuinely thought I had an ovarian cyst. I went to the hospital because I thought I was dying and they did both types of ultrasounds and a CT and found nothing. I just did the ultrasounds again and nothing came up. The pain feels like it’s getting worse. I feel like my ovaries are exploding and it’s hard to walk with all the pain. I have venus malformations on my hip and face. We’re… read more

November 12
View reactions
A MyEndometriosisTeam Member

You are not alone dear, more than anyone else we know what you are suffering like us with endo. But we are in this together, strong woman fighting for this health condition that seems the most neglected without proper treatment.. But there is hope, as you endure you'll becoming stronger.

November 26 (edited)
A MyEndometriosisTeam Member

Im still trying to get a diagnosis. I feel helpless. I can’t describe the pain I’m in and when the pain does end I seem to gaslight myself as well. It’s impossible to see my doctor and when I do see them I’m told I’m “fine”. I’m going to keep advocating for myself and I hope you do as well. 🙏🏽

December 7
A MyEndometriosisTeam Member

I feel that family has never understood
I’m divorced
It’s tough but for me my Faith in GOD is my strength
I’m not alone in this forum
When reading some posts I feel like I’m reading my journal
B strong Warrior
Blessings 💕🙏🏽

November 30
A MyEndometriosisTeam Member

My diagnosis took 15 years because doctors don't know enough! I finally found an endometriosis specialist who was amazing and so knowledgeable. Maybe try look for one?? It's wonderful to feel seen and heard! Hoping you get somewhere soon on your journey. You aren't insane 💓

November 28
A MyEndometriosisTeam Member

You are definitely not insane.
I went through the same at age 13. My diagnosis took several years and several doctors.
Try other doctors and I hope you do find the appropriate help and get a diagnosis.
There are so many lack of diagnosis, please don't give in trying to find a good doctor 🙏

November 12

Related content

View All

Weak, Dizzy, Fainting- Why?!

A MyEndometriosisTeam Member asked a question 💭
Wonderland

Does Anyone Else's Feel Like Their Pain Increased After Having Laparoscopy Surgery?

A MyEndometriosisTeam Member asked a question 💭
Troy, OH

Other Ailments Or Conditions Along With Endo?

A MyEndometriosisTeam Member asked a question 💭
Rancho Cucamonga, CA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in