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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Presacral neurectomy" in Q&A. To see all results and access other features, sign up for free.

Presacral Neurectomy-Loss Of Sensation And/or Unable To Orgasm?

A MyEndometriosisTeam Member asked a question 💭
State College, PA

Hello all,
I’m 23 years old and I am about to have my first laparoscopic excision surgery on March 3rd. Along with the excision surgery my doctor wants to do a presacral neurectomy. I have read that this either doesn’t work, makes the pain worse or makes orgasms nearly impossible. So I’m not sure if I should agree to do the presacral neurectomy or not. Any suggestions/opinions/experiences?

A MyEndometriosisTeam Member

Thank You for providing that link. I have been researching this intensely since my doctor suggested it. These decisions can be so tough! :(

Presacral Neurectomy, Anyone?

A MyEndometriosisTeam Member asked a question 💭
Eastern WA

I got a message in my portal and so far they're saying we can do a diagnostic lap with excision of endo if found along with a presacral neurectomy because I'm not ready to have a hysterectomy yet. Any thoughts, pros/cons on the presacral neurectomy??

A MyEndometriosisTeam Member

how was the presacral neurotomy?

Have Pain Relievers Or Presacral Neurectomy Interfered With Orgasms?

A MyEndometriosisTeam Member asked a question 💭
Seattle, WA

I know this may be a private subject for some of you, but I'm curious how many of you are suffering from disrupted orgasm.

Right now I'm taking Tramadol and an occasional duiladid and not sure if that is disrupting an orgasm or if it's the presacral neurectomy I had done.

Any insight?

A MyEndometriosisTeam Member

Yeah it sucks! And I'm still in pain so of course I'm not happy I had it done

Asking For My Daughter (18 Years Old). Anyone Undergo Presacral Neurectomy?

A MyEndometriosisTeam Member asked a question 💭
Bridgewater, CT

She's had Endo for a couple years now, been on continuous birth control, now on MyFembree with an addition of estrogen. Nothing works, and her symptoms are getting worse. I've contacted her doctor to schedule laproscopic surgery, and came across Presacral Neurectomy. Wondering if anyone has had it?

Anybody Tried PRESACRAL NEURECTOMY/nerve Blocking?

A MyEndometriosisTeam Member asked a question 💭
Germany

Has anybody tried PRESACRAL NEURECTOMY? Is it effective for dyspareunia? I have an unexplained vaginal pain which is the worst of all. No doctor seemed to relieve me so far 😣

A MyEndometriosisTeam Member

Sorry to know that 😣

Endometriosis Diagnosis

A MyEndometriosisTeam Member asked a question 💭
New York, NY

Hi everyone, I am new here.

I have not been officially diagnosed with endometriosis from laparoscopy (which I hope to do so soon) but I have a few questions if anyone can help
I believe I've always had endometriosis but pain started occuring in 2020 out of no where. Pelvic pain, frequent urination, painful sex, abdominal pain, flank pain and long story short the doctors said I might have interstitial cystitis along, they found some pitchea and glomerations during my… read more

A MyEndometriosisTeam Member

The best doctor that I gave come across is Dr. Robert Furr he’s in Chattanooga Tennessee he’s doing my surgery next month for excision of endometriosis I have a few things to go along with that like… read more

Has Anyone Had A Presacral Neurectomy Done?

A MyEndometriosisTeam Member asked a question 💭
Dickinson, TX

I’ve had several laparoscopic surgeries to remove endo and it keeps coming back even after I’ve had everything removed. I’m in constant chronic pain. I’m looking for recommendations for a surgeon.

A MyEndometriosisTeam Member

I had this done during my first surgery when I was 15. At the time, my endo/fertility specialist did the surgery.

Anyone Have Presacral Neurectomy Done?

A MyEndometriosisTeam Member asked a question 💭
Grand Junction, CO

My doc has been talking about doing a presacral neurectomy. The thought of it terrifies me, but at the same time i dont want to keep going thru 2 surgeries a year.. has anyone had this done? Pros and cons? Does it actually give long term relief?

Pain Management

A MyEndometriosisTeam Member asked a question 💭
Milwaukee, WI

Hello! I am having trouble finding pain medications that actually works to relieve pain. I have used narcotics in the past but those just make me sick. Ibuprofen and naproxen occasionally work but I need something that works! Any suggestions??

A MyEndometriosisTeam Member

I take Co-Codamol and use heat patches x

Has Anyone Been Diagnosed With Adenomyosis Of The Cervix?

A MyEndometriosisTeam Member asked a question 💭
Memphis, TN

I am trying to decide whether to try a presacral neurectomy, IUD, or just get a hysterectomy. I am having immense pelvic and rectal pain. It radiates down my legs.

A MyEndometriosisTeam Member

I have adenomyosis and endometriosis. I have a surgical consult in April for a hysterectomy. Unfortunately none of the treatments we have tried have helped and I'm at the end of my rope. Feel free to… read more