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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are All The Different Stages Of Endometriosis Different Pain Levels?

A MyEndometriosisTeam Member asked a question 💭
Colorado Springs, CO
May 6, 2019
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A MyEndometriosisTeam Member

My doctor told me that she did surgery on a women who’s uterus & everything was destroyed from the endometriosis & she had barely any pain. & she’s also seen women who have a little bit but with the worst pain in the world. So I guess the pain doesn’t really go by the stages.

May 6, 2019
A MyEndometriosisTeam Member

Not necessarily. A woman can be in excruciating pain and have Stage I disease while another woman with no pain at all may have Stage IV.

That's what's so frustrating. There is no rhyme or reason to this diseaae and the level of pain felt.

May 6, 2019
A MyEndometriosisTeam Member

Agree. I had very few lesions removed at my last excision surgery, but my pain is severe. My coworker got a hysterectomy and they discovered a lot of endo lesions, but she was never symptomatic.

May 6, 2019
A MyEndometriosisTeam Member

Yes

May 11, 2019
A MyEndometriosisTeam Member

How annoying is it to habe someone negate and invalidate what we have been told.

May 7, 2019

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