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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi Has Anyone Had Any Good Or Bad Experiences With Gonadrotphin (GnHR) Injection.

A MyEndometriosisTeam Member asked a question 💭
Halesowen, UK

Im thinking about starting GnHR next month.that was some advice i got of a private specialist

September 13, 2020
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A MyEndometriosisTeam Member

I was on Orilissa for about eight months (that's the daily pill version) before my second pelvic surgery (hysterectomy, excision, cyst removal). It did help with my pain, but there were side effects and the pain relief didn't last for me. I had to up my dosage in May (two months in) because my pain was in the level 8-10 range every day. I had dry skin, joint pain, headache, and vision changes.

IMHO, it was necessary but unpleasant. Still, I'd never have been able to work without the Orilissa as a stop-gap measure.

September 14, 2020
A MyEndometriosisTeam Member

I'd be very cautious about going on it. I was in it for a year and it gave me a fatty liver. It's a very harsh medication. Please ask your Doctor(s) about potential side effects.

December 12, 2023 (edited)
A MyEndometriosisTeam Member

Yes dear,my worst experinece is having a palpitations for 1 month then I stop the 2nd and 3rd dose...My heart is so tired and almost my body want to give up.The flare of hot flashes ,mood swing..I can't understand my body anymore I feel theres something controlling my system ,untill now.God Bless warrior ..sending hug and my prayers is for us to be heard in the society that this disease is not ordinaryy and the government should include our case to avail free meds..since a lot of laboratory and everything,I almost want to sit on the street and beg for help to be honest.

October 24, 2023 (edited)
A MyEndometriosisTeam Member

I was on the monthly Lupron injection for a year. It did nothing for my pain levels and gave me a Fatty Liver, which took a year after stopping the drug to reverse itself. Be very careful with it. It was a medication originally designed for men w/ prostate cancer so in my opinion not exactly fit-for-purpose. Like any medication, costs vs. benefits must be weighed by each patient taking it.

August 1, 2023
A MyEndometriosisTeam Member

Thank you TifE fir sharing your expeience with me. II really appreciate it.
Are you able to work now?
How long was your recovery time after your second surgey?(if you dont mi d me asking) 💕

September 15, 2020

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