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Which Endometriosis Symptom Surprised You The Most?

MyEndometriosisTeam asked a question 💭
San Francisco, CA
August 22, 2024
 · 
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Answer Summary

Members shared a wide range of endometriosis symptoms that caught them off guard, with leg pain, hip pain, extreme fatigue, and debilitating... Read more

Members shared a wide range of endometriosis symptoms that caught them off guard, with leg pain, hip pain, extreme fatigue, and debilitating migraines emerging as some of the most common and surprising experiences. Many community members described gastrointestinal issues like severe bloating, constipation, food sensitivities, and the need to adopt specialized diets, as well as less commonly discussed symptoms including allergies, flu-like feelings before cycles, joint pain, skin sensitivity, and pain that radiates through unexpected areas like the shoulder or wrist. A recurring theme was the emotional toll of feeling dismissed by healthcare providers, the loss of normalcy in everyday activities, and the solidarity found in recognizing their own symptoms reflected in others' stories.

A MyEndometriosisTeam Member

Gastrointestinal symptoms. Pain with bowel movements and an upset stomach (diarrhea). I was reading about how endometrial tissues release an inflammatory mediator that can irritate the intestines and nearby organs.

August 22, 2024
A MyEndometriosisTeam Member

I get pain before and after going a poo , fatigue , lower back pain

August 29, 2024
A MyEndometriosisTeam Member

Flu like symptoms days leading up to hell, didn’t relate that till later in life…so now I start popping pills and preparing for the wrath of endo I know is coming! It’s the “electrical” shocks outta nowhere that always floor me! I know yall know what I’m talking about!!! What are those?? 🤦🏼‍♀️. Power on!!! 💗

September 21, 2024
A MyEndometriosisTeam Member

Omega 3 & Probiotic supplements can help with inflammation and bloating. 2023 research shows regular Probiotic supplementation reduces endometriosis symptoms provided avoid junks completely and eat balanced diet with enough veggies.

August 27, 2024
A MyEndometriosisTeam Member

I would have an episode of excruciating pain from pelvic to lung area for 1-2 hours where I would run to the tub as soon as it started if I could and barely able to move until it subsided (with maxing out doses of Naproxen /Acetaminophen/handful of herbal remedies doing nothing). I recently had exicison surgery, and my surgeon shared that most likely these events would be at least one of my endometriomas leaking, causing fluid in the area and creating an intense reaction.

August 22, 2024

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