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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Orilissa" in Q&A. To see all results and access other features, sign up for free.

What Are The Best Treatment Options?

A MyEndometriosisTeam Member asked a question 💭
Girdwood, AK

I have had horribly painful periods since I was 14. My periods would last 30+ days, so I was put on the pill before I could drive. My periods have since regulated but they’re excruciately painful and have been for as long as I can remember. I’ve had to leave work or school if I didn’t have ibuprofen on hand. Sometimes I take 1600mg every four hours and I can still feel the pain (I never use ibuprofen when I’m not on my period except for when I have migraines)
I’m a runner and ski mountaineer… read more

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A MyEndometriosisTeam Member

Depo is a perscribed birthcontrol shot that is given every 3 months, you dont get a period while on it.

Orilissa Treatment?!

A MyEndometriosisTeam Member asked a question 💭
Deerfield Beach, FL

Saw my doctor today to discuss treatment options after my lappy (May 2019) and continuous hormonal birth control (no periods) have failed to manage my symptoms. Can anyone share their experience with the Orilissa treatment?

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A MyEndometriosisTeam Member

Hello! I highly recommended finding a specialist who can do an excision! I was on 200 mg of Oriliisa. It really did help my symptoms and I have stage 4! I did experience night sweats and weight gain!

Orilissa Treatment

A MyEndometriosisTeam Member asked a question 💭
Montrose, MI

Hey ladies! I will be having my left ovary removed soon. I keep becoming septic and in and out of the hospital. My Doctor would like me to start on Orilissa after my surgery. Can I hear your stories about this medication?

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A MyEndometriosisTeam Member

I was on the max dose for the max length of time for Lupron and Orilissa. With both of them, my period eventually stopped (which was beneficial for me because with no period means no pain or symptoms… read more

Has Anyone Taken Myfembree?

A MyEndometriosisTeam Member asked a question 💭
Reno, NV

Anyone take myfembree and have liver or kidney issues?

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A MyEndometriosisTeam Member

I have been taking it now for 2 months, some hot flashes at first. Now it's been 2 months and no side effects really.

Cycles After Hysterectomy (radical, No Ovaries)

A MyEndometriosisTeam Member asked a question 💭
Michigan, MI

This may sound like a stupid question. I know @A MyEndometriosisTeam Member talks about being able to tell when cycles would be starting despite having a hysterectomy, but keeping her ovary (ies) due to hormonal fluctuations. Does that just completely and utterly shut down when you have a radical hysterectomy (no ovaries)?

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A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member, thanks for my hug!

How Long Has The Relief From An Excision Surgery Lasted For You?

A MyEndometriosisTeam Member asked a question 💭
Mesa, AZ

I am getting close to my year mark since my surgery. It was life changing for me and I was hopeful that the relief from it would last a couple years, but I’ve been having a really hard time these last couple months and am starting to feel back to square one. I know it’s not a magic cure and that endo grows back, but I guess I was hoping for longer results.

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A MyEndometriosisTeam Member

I have never heard of that doctor. I see wonderful doctor who went to harvard in north scottsdale his name is Dr Akl he knows all about Endo

Lupron HRT

A MyEndometriosisTeam Member asked a question 💭
Westchester County, NY

Hi Ladies:

Has anyone here been on Lupron Depot HRT treatment. If so any side effects? Is it helping?

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A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member Thank you so much for the info above. My gyn surgeon wanted me to go on Orlissa originally, regretfully couldn’t get it approved via insurance. Insurance did approve the… read more

Orlissa - What Were Your Side Effects?

A MyEndometriosisTeam Member asked a question 💭
Ketchikan, AK

After my laparoscopy in Oct 2021, I was prescribed Orlissa. I've notice my mental health is declining rapidly. I have a history of being on birth controls that made me have very manic depressive episodes. This time these episodes are more frequent and severe. I'm trying to determine if its the medication or if it's me.

Additionally, if you were prescribed Orlissa and take an anti-depressant at the same time, I'd love to hear your experience too as that may be a route I need to take.

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A MyEndometriosisTeam Member

I did take Prozac while I was on Orlissa for a while. I don’t think there were any issues taking it with Orlissa and if Orlissa is helpful you I hope you can get your mental health to a place where… read more

Orilissa

A MyEndometriosisTeam Member asked a question 💭
Bentonville, AR

Has this medication worked for anyone?

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A MyEndometriosisTeam Member

Mine worked for a while until it didn’t after a couple of months. Doctor just put me on a higher dose at 2 times ago. Hot flashes are definitely a thing.

Kidney Issues On Orillisa?

A MyEndometriosisTeam Member asked a question 💭
Wolcott, NY

Has anyone been prescribed Orillisa and had unexplained kidney pain? Im trying to rule out if it is the medication or not. I have a history of recurring ureter endometriosis so im worried about that as well. Going to my obgyn on Wednesday.

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A MyEndometriosisTeam Member

What dosage have you both taken? Im on 150mg and it hasnt helped with pain at all. My obgyn wants to try me on 200mg twice a day or start lupron. (I have a mirena iud as well) Im having a pelvic US… read more