In my case, nothing showed on ultrasound or MRI, but based on symptoms I had been having for years, and a pelvic exam by a specialist, I was finally surgically diagnosed. I had to push for diagnosis/treatment of endometriosis and found the specialist through that network I told you about. Before that I was diagnosed with pelvic floor dysfunction, anemia, sciatica, pudendal neuralgia and lumbar scoliosis, but those were all caused by how severe the endo had gotten. It was quite a journey but I was very happy I ended up with proper treatment. He was such an excellent doctor and knew where there would be endo based on reviewing my case. He reviewed my case for hours and used my pain and pelvic exam as a guide during surgery, which wound up being close to 5 hours. The disease can't always be seen, for example he excised my uterosacral ligament that looked clean, based on my symptoms, and the pathology was endometriosis. My appendix was also badly scarred, so I had an appendectomy, endo of the rectal wall, pelvic sidewalls and colon. none of this was seen on my tests because my ovaries and uterus weren't directly effected besides the draping of the bowel, which I guess wasn't hiding the ovary on ultrasound.

One more question @A MyEndometriosisTeam Member - how were your adhesions and frozen pelvis diagnosed? Mine was via manual exam and I am having an ultrasound as part of my pre-op appointment.

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A MyEndom...

any time :)

Thank you @A MyEndometriosisTeam Member! Very helpful advice!

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A MyEndom...

I had a lot of adhesions and organs fused together and even had my bowel was draped over my ovary and fused to my ribcage. After excision surgery with Dr. Robbins, in Portland, Maine, my quality of life has been significantly improved. I would make sure that your lap is with an excision specialist and not someone that's just going to burn off or use ablation, as that will only make your adhesions worse. I traveled to see a specialist and it was totally worth it. It was my first surgery as well. Having that first surgery with a true specialist, will give you the best quality of life and prevent further adhesions. I highly suggest you check out the facebook group, endometropolis, there is a map of excision specialists on there. Hope this helps!