Connect with others who understand.

Sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Ever Been Diagnosed With IBS, When It Really Was Endometriosis All Along?

A MyEndometriosisTeam Member asked a question 💭
Virginia Beach, VA
August 6, 2018
Be the first to like/hug
A MyEndometriosisTeam Member

Wow megjunebug! You are literally describing my health track record. You're the first person I've met that have exact same symptoms and the docs also tell me not to worry because I also had a normal CT, but blood and proteins in urine. Although I think they're kind of guessing at this point. I've never been pregnant before though.
I also have pressure in bladder and frequent urination so doc put me on OABS meds (toviaz). So far it helps with frequency. Have you had the lap done? I really hope we can stay in touch because it sounds like we are suffering the same. I hope our persistence gives answers! I'm scheduled for an ultrasound Thursday for further investigation. Try to feel better. Keep me updated on your journey!

August 6, 2018
A MyEndometriosisTeam Member

LindseyRochelle... Wow I’ve been having traces of blood and protein in my urine now for the last 2 years myself, but they keep saying to not worry since it’s only occasionally. I’ve also been having lots of pressure on my bladder and peeing more than often at times. I also had pre-eclampsia with my daughter 2 1/2 years ago when she was born. I still worry about my kidneys, but my doctor said since I had a CT of my abdomen/pelvis they didn’t see anything abnormal with that.

I also was given Prilosec and have been on it for about 4 months now for my acid reflux/heartburn issues I have. It’s crazy because I’ve had issues with my period since I first started them, but just kept thinking to myself this is normal. I’ve been having the break through bleeding for the last 8 years, but they just keep switching my BC Pills. It’s a confusing world and I’m not giving up hope. I’m being my own advocate. That’s all we can do for ourselves. Health #1

August 6, 2018
A MyEndometriosisTeam Member

I was diagnosed in 2014 with GERD. I had constant GI issues as long as I can remember I've also always taken Nexium.
I also always had throat issues and they said I have bad tonsils and chronic tonsillitis. All managable.
It wasn't until this year I started having blood in my urine which lead to Endo probably being the issue (haven't had lap yet).
I've never had breathing issues, but I've had tightness in throat and abdomen. I know it's hard for me to rationalize that all these symptoms can be from Endo but same time all my tests are coming back quite normal as well. I hope they find a solution for you.

August 6, 2018
A MyEndometriosisTeam Member

I've been told I have IBS, OABS, and endo so far so I guess it's normal?!

August 6, 2018
A MyEndometriosisTeam Member

UBS is also a symptom on Endo. So you can have both. I know I do x

August 6, 2018

Related content

View All

Hi Everyone...I Was Diagnosed With PCOS 3 Yrs Ago And Severe Endo Last Year. My Question Is About Weight Loss After A Full Hysterectomy?

A MyEndometriosisTeam Member asked a question 💭
Halifax, NS

Two General Laparoscopy Surgery Questions/Curiosities

A MyEndometriosisTeam Member asked a question 💭
Washington, DC

Nothing On Ultrasound?

A MyEndometriosisTeam Member asked a question 💭
Montreal, QC
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in