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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Autoimmune Symptoms?

A MyEndometriosisTeam Member asked a question 💭
Denver, CO

Hey all, I'm curious if all this is still just Endo or if I've been struggling with an Autoimmune. I've been to a RA and I had one positive ANA 1:160 and 2 negatives. They've tested me for a bunch of things, but everything came back negative. I'm pretty exhausted with everything on top of the endo coming back from my ablation, and new chronic migraines almost daily. I just have been having different symptoms, swelling hands, stiff joints, new Raynalds diagnosis, half-sister has a severe… read more

July 10
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A MyEndometriosisTeam Member

I have been extremely exhausted this past year and until recently I thought my Endo was still in my past. I was diagnosed with Epstein Barr (virus that causes mono) last year so I take a supplement anytime I'm feeling drained to boost my immune system so the EBV doesn't come back and affect me for up to 12wks. If I hadn't had blood work done to confirm the EBV I would still be thinking it was something hormonal. I had been considering that I was starting to go through menopause because my emotions have been all over the place, I'm always exhausted, starting to have issues getting restful sleep, my body temp has been running hotter and I'm more easily triggered whether it be getting easily irritated or crying for no reason. The pain from my Endo returning in May and June has at least given me a reason to understand the changes I've been feeling. If I'm still feeling this way after surgery and going back on depo for 6 months to regulate my hormones, then I might look into seeing an immunologist.

July 11
A MyEndometriosisTeam Member

im in the same boat. Keep advocating for more testing. My doctors have been saying its just endo for a year, but I've been trusting my gut that something else is going on. I was able to get in to a Chronic Fatigue Clinic and got a formal CFS diagnosis. That doctor thought it would be good to do another test panel to rule out other autoimmune issues. Sure enough some tests came back irregular. Im still awaiting my next appointment to talk to an immunologist about what those tests mean, but I think we are onto something that could help me treat my symptoms better. You know your body better than anyone! <3

July 10

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